It now has been three weeks since Jacob has had the Bilateral Glenn Procedure. He is still on a breather and running low grade fevers from time to time. It feels like he is not getting better but it is just taking longer than I had hoped. He still has to have one more procedure in the next week or so. Doctor Vincent has to stent his left pulmonary artery in the Catheter lab. They have to do this because the artery is atretic. He is not getting the oxygen he needs because of it.
One thing you parents of hypoplastic babies have to look forward to is getting familiar with enough medical jargon to get you through two years of pre-med. I feel like I could teach a class on the subject.
Jacob looks better and better each time I see him although he is making only slow progress. Slow progress is better than no progress. I am anxious to get him back to St Mary's Children Hospital so he can continue with his therapies. He is restrained here so as not to pull at his intravenous lines - and there are quite a few of those. The restraints prohibit any physical therapy. His chest wound looks great but I can only imagine how much it hurts him. Perhaps in three more weeks he will be past all of this and in a regular room. For now, we wait...as if we had a choice.
One thing you parents of hypoplastic babies have to look forward to is getting familiar with enough medical jargon to get you through two years of pre-med. I feel like I could teach a class on the subject.
Jacob looks better and better each time I see him although he is making only slow progress. Slow progress is better than no progress. I am anxious to get him back to St Mary's Children Hospital so he can continue with his therapies. He is restrained here so as not to pull at his intravenous lines - and there are quite a few of those. The restraints prohibit any physical therapy. His chest wound looks great but I can only imagine how much it hurts him. Perhaps in three more weeks he will be past all of this and in a regular room. For now, we wait...as if we had a choice.
