Tomorrow, March 17, 2014, Jacob goes in for his Fontan procedure. This is the final of the big three surgeries.
As you know, I can get quite anxious before a procedure, even a minor one and this is how I deal with it - venting to anyone who will lend an ear. All day today I gave him extra hugs and tickles. I kept focusing on two lines of thought; how will he be after the surgery and could this be our last day together. I know that he is in the best care around, but I just can't shake these feelings. My wife and I have been feeling a bit of friction and the cause is this anxiety before the operation.
Tonight when we put down the twins, all five of us were in the room together. I couldn't help thinking that this is the last time all of us are going to be together for quite some time.
Time to go to bed -its'a big day for me too.
This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Sunday, March 16, 2014
Wednesday, February 26, 2014
Here we go again
I can't believe that it's been so long since I last wrote on this blog. Things have just been so normal with the family. There really hasn't been a lot to write about. That's about to change. Jacob has been scheduled for his next surgery, the Fontan. On March 14 he will be under the knife once more.
Jacob has really turned the corner with his walking and his speech. He does not scoot anymore and is starting to develop a run - especially when he is being naughty and knows it. He is a wise ass like his dad.
I have a feeling that this surgery is going to be the roughest of the three surgeries. Not so much as for its risk and complexity but for the potential effects that it will have on the family as a whole. Since he is no longer a baby and is quite aware of what goes on around him, the separation from mom and dad and the physical pain of the surgery are going to be hell for Jake.
Jacob and I have a special bond, one that I have noticed getting stronger in the past few months. He is a daddy's boy. The two of us love rough-housing and getting into tickle fights. He has a laugh that is just infectious. His giggle makes you want to giggle along with him. I am afraid that I will lose all of that, even if just temporarily. I know that this surgery is needed and there really is no avoiding it, but I am getting scared. What will happen to my little man?
Jacob has really turned the corner with his walking and his speech. He does not scoot anymore and is starting to develop a run - especially when he is being naughty and knows it. He is a wise ass like his dad.
I have a feeling that this surgery is going to be the roughest of the three surgeries. Not so much as for its risk and complexity but for the potential effects that it will have on the family as a whole. Since he is no longer a baby and is quite aware of what goes on around him, the separation from mom and dad and the physical pain of the surgery are going to be hell for Jake.
Jacob and I have a special bond, one that I have noticed getting stronger in the past few months. He is a daddy's boy. The two of us love rough-housing and getting into tickle fights. He has a laugh that is just infectious. His giggle makes you want to giggle along with him. I am afraid that I will lose all of that, even if just temporarily. I know that this surgery is needed and there really is no avoiding it, but I am getting scared. What will happen to my little man?
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