Oh...I almost forgot - great news about his G-tube

His G-tube has been removed! With all thats been going on in our lives, I guess even something this significant can be overlooked. Last Friday during a visit with his GI doctor, she recommended that the port be removed. I didn't know that that meant right then and there. Christina was asked to leave the room when it was done ( I was with Corinne in the waiting room). After a few minutes he was done. No anesthesia, just a good hard yank and it was out. We were told that there could be a little blood and some oozing. Sunday night I ran to the local ER because it looked like a frikkin gunshot wound! The neat little hole was oozing blood and stomach acid and soaking his dressing. It was the sixth time I changed the wound dressing when it looked like something out of Saving Private Ryan and said "screw it" and went to the hospital. After being admitted quite rapidly at St. Joseph's in Bethpage I was told that there was nothing to worry about - it was quite normal. Jeez, if thats normal I'd hate to see abnormal. Anyhow, now that it has been closing on its own, it is looking better and better. I am just using light gauze at the moment and there is no more oozing of acid or blood. One more chapter in his life is ended. Time to write a new chapter.

Six Weeks in Exile

It has been more than six weeks since we were banished from our home because of Hurricane Sandy. We have adapted to living in a hotel room - although it is far from ideal. Jacob does not seem to mind the change anymore. In the month since my last post we have arranged for Jacob's therapies to be given at the hotel. He has been fitted for and received leg orthotics. He is now getting used to moving around with the new orthotics. He is trying his hardest to stand on his own. I will just put him on the floor and let him explore. He is quite inspiring to watch. He does not let his handicap stop him from getting into trouble either. He and his sister will go into the kitchenette when no one is looking and start digging through the cabinets, ripping up the paper towels, trashing the napkins and other loose items.
We recently visited the school where he will be sent to when he becomes two. The Little Village School in Seaford appears to be ideal for his condition. He will start going for a couple of hours a day and will get much needed social interaction.
Things remain up in the air as far as returning to the house. Work is progressing slowly and there is a problem with contaminated soil under the house that has to be removed at much expense. The estimated move date has been pushed to about New Year. Christmas is going to be "different" to say the least.