First Sit-up!

Today, after his bath, Jacob completed his first sit-up! I had very light pressure on his left leg as he did it, but this is still a milestone for him. I am so proud. He was also showing off his range of motion on the floor today as he was scooting and "inchworming" around to his toys.

Doctors' visit

On Friday we visited with both doctors Better and Lazare. I am proud to say that both of them were absolutely shocked when they saw Jacob. They were totally caught off guard that his hair is almost totally blonde and that he looks so plump. They hadn't seen Jacob in three months and were pleased with his apparent progress. Jacob was not very happy with the idea of going for a doctors visit. I as soon as we opened the door to the building he started screaming his head off. He screamed continuously for an hour and a half. I'm sorry to say that he doesn't care for medical staff types at this age. I wonder what he remembers about the first half of his life and the lengthy hospital stays. Anyhow, we eventually got some readable ultrasound results after he passed out from all of the screaming. Dr. Better said that his heart was beating quite strongly and would no longer require the Digoxin. One less medicine is great. He is still on baby aspirin and Enalipril though. The next visit was with Dr. Lazare. Since we no longer use the feeding tube and pump we were hoping to get the GI port removed. She felt that it should stay for a few more months just in case. Both doctors are pleased with his progress and that makes me feel a whole lot better.

Jake's Summer of 2012

In the past months that Jacob has been home he has been ever so slowly increasing in size and physical capabilities. You can see it in his face that he really wants to get up on his own and play with toys. His sister appears to be his 'enabler' when it comes to toys. She will bring him every toy in the room. We just have to have her stop dropping them on Jake's head. I am addicted to Jacob's laugh. His giggle will light up an otherwise dreary day. After work it is a most welcome sound. His serious health issues appear to have slackened off for a while and he is just having normal toddler issues now - you know - screaming, teething, throwing dinner on the floor then laughing...all the normal stuff. We have totally abandoned the tube feeding port in his belly. We are hoping to have it removed a the time of his next procedure. That being said, we have no idea of when that will be. His next cardiology appointment is this Friday. I am sure that there will be good news as he has had no signs of heart trouble or serious cyanosis. Sure there is a little cyanosis as there is still some mixing of the oxygenated blood and the venous blood, but you can rarely see it. All in all, Jacob is having a good summer. We take him to the park, the beach and the pool. He absolutely loves the pool. You know, the kiddie pool as it is really nice and warm. I wonder how it got that way? Anyway, I hope your summer is as trouble free and pleasant as ours.