A rough week with a happy ending

This past week was a little rough for Jacob and his parents. He started to vomit at least once every day. I started to get very concerned. We had recently increased his feeding rate from 55 ml/hr to 70 ml/hr. Thinking this was the problem, we reduced the rate back to 55. This did not work. He has had the same feeding tube since he has been home. This could also be a source of the problem. I have been cleaning it in hydrogen peroxide but that didn't seem to do the trick either. Today, this all seemed to stop. He has a new nurse that specializes in feeding issues. She has gotten him to eat real solids from Cheerios to chicken - and he has held it all down. Maybe it is time to only give him a few feedings via the tube and really hunker down and concentrate on the oral feeding. It is so hard when he fights eating though.
On another up-side, Jacob's physical therapist called me at work when he heard that I was becoming despondent about his ambulatory progress. He guaranteed me that he would walk and have extensive use of his left arm. He also said that the progress was all up to him. He has proven himself to be a fighter already so I think he will do well.
I had promised some photos, so please enjoy Jacob's first Christmas photos.

A Happy New Year

This New Year is already starting out better than the last year. Jacob's therapists are very happy with his progress. The focus now is on his feeding. No one wants Jacob to be on his feeding tube forever. Jacob is going to have to learn to eat even though he makes it quite challenging. As it stands now, he tolerates one half of a jar of baby food at a time before he throws a fit. Is he tired? Is he just lazy? I wish he could just tell us but he can't. We have had great success with the nursing staff too.  We started using a new agency and they seem to have much better management and really run a tighter ship. I feel that he is getting very good care from his nurses. On the down side, he still is not rolling over on his own or making any apparent progress with his left leg. I know he will eventually be ambulatory but I can be a bit impatient. He was having some trouble last weekend with vomiting. He got a clean bill of health from the pediatrician but I was a bit concerened.  He seems to be all better now. Let's see what the rest of the year has to offer. A lengthy visit to the hospital would not be welcome this year.