Homecoming

On March 7, 2011 Jacob came home.  We had a small family get-together to celebrate the occasion. He came home to a family that couldn't wait to see him.  John Paul was so very proud to be the Big Brother.  We started to get into a daily groove.  Corinne was starting to do very well with eating while Jacob still had trouble.  Corinne would suck down 4 ounces in a hurry while Jake would only take 1 ounce by mouth and the rest of his feeding via tube.  A few weeks passed by and Jake's weight was increasing.  We were giving him a high-calorie formula to boost his weight without increasing his fluid intake.  Excess fluid would wind up in the lungs and he was on diuretics to help prevent that from happening.  Soon thereafter, we had to stop bottle feeding him, he would vomit the formula back up soon after eating.  The bottle feeding was too much too fast for the little guy.  We wound up feeding him almost exclusively via tube. His heart was working harder and harder to pump his blood and would need the second atrial septostomy soon.  We took him in for his procedure on April 21st and the rest you already read about.  Now that the history is done, my posts will be day by day in realtime.