Jacob has been moved to the nursery in St. Mary's and has just had a visit at CHONY to see Dr. Vincent. She seems to think that Jacob will not need another catherization before his next procedure - thank God. Tomorrow is Father's Day and I am looking forward to seeing my boy. I am still getting the feeling that I am not bonding with him properly. How can I? I want him home, but I know he is at the best place he can be right now...I can wait.
We recently received the latest itemized bill from CHONY. All I have to say is THANK GOD for insurance. Jacob's medical bills are almost at the $1 million mark. He has about 4 more weeks of hospitalization at St. Mary's and then he will be going in for the next big surgery. It may be another three whole months until he is home again. His next procedure is the Glenn Shunt.
This next procedure is a biggie. It involves stopping the heart and moving the large blood vessels around to make the heart a more efficient single pump for the body. The whole stopping-the-heart thing scares the hell out of me...a simple cath procedure almost killed him last time. If I have learned anything in the last 4 months its that worrying about something doesn't help.

Steve, there is nothing I can say. This has brought me to tears. I can't even fathom what you are going through. You and your family are in our prayer my old friend.
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