This weekend we went to St Mary's for more training. We did more training on the G-tube; cleaning the tube, removing and inserting it, etc. We also found out that he was still receiving Lovenox. Unfortunately, it is injection only. Jacob requires two shots daily. We were given an option of sticking him every twelve hours or only once each week. We chose the latter. The option we chose was to it in a hypodermic catheter into his leg once a week. It works like this:
It is kind of like an IV but the needle does not remain in the skin. There is a thin sheath that covers the needle and the sheath remains in place. After the needle is pulled, the body of the catheter is like a butterfly used in collecting blood. The butterfly is taped down exposing the port. The port is where the medicine is injected into. One painful jab per week is a lot better than doing it twice a day. The poor kid's legs look like a junkies arm. God, give me the strength to do this...please!
We are still on for a Thursday release.
This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Sunday, October 23, 2011
Special training
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