This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Friday, January 13, 2012
A rough week with a happy ending
This past week was a little rough for Jacob and his parents. He started to vomit at least once every day. I started to get very concerned. We had recently increased his feeding rate from 55 ml/hr to 70 ml/hr. Thinking this was the problem, we reduced the rate back to 55. This did not work. He has had the same feeding tube since he has been home. This could also be a source of the problem. I have been cleaning it in hydrogen peroxide but that didn't seem to do the trick either. Today, this all seemed to stop. He has a new nurse that specializes in feeding issues. She has gotten him to eat real solids from Cheerios to chicken - and he has held it all down. Maybe it is time to only give him a few feedings via the tube and really hunker down and concentrate on the oral feeding. It is so hard when he fights eating though.
On another up-side, Jacob's physical therapist called me at work when he heard that I was becoming despondent about his ambulatory progress. He guaranteed me that he would walk and have extensive use of his left arm. He also said that the progress was all up to him. He has proven himself to be a fighter already so I think he will do well.
I had promised some photos, so please enjoy Jacob's first Christmas photos.
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My goodness, your mother looks fabulous! Please tell her I said, "Hello" and keep up the great grandma work. Jeanmarie
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