Jake's Summer of 2012

In the past months that Jacob has been home he has been ever so slowly increasing in size and physical capabilities. You can see it in his face that he really wants to get up on his own and play with toys. His sister appears to be his 'enabler' when it comes to toys. She will bring him every toy in the room. We just have to have her stop dropping them on Jake's head. I am addicted to Jacob's laugh. His giggle will light up an otherwise dreary day. After work it is a most welcome sound. His serious health issues appear to have slackened off for a while and he is just having normal toddler issues now - you know - screaming, teething, throwing dinner on the floor then laughing...all the normal stuff. We have totally abandoned the tube feeding port in his belly. We are hoping to have it removed a the time of his next procedure. That being said, we have no idea of when that will be. His next cardiology appointment is this Friday. I am sure that there will be good news as he has had no signs of heart trouble or serious cyanosis. Sure there is a little cyanosis as there is still some mixing of the oxygenated blood and the venous blood, but you can rarely see it. All in all, Jacob is having a good summer. We take him to the park, the beach and the pool. He absolutely loves the pool. You know, the kiddie pool as it is really nice and warm. I wonder how it got that way? Anyway, I hope your summer is as trouble free and pleasant as ours.