This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Tuesday, September 11, 2012
Forward Progress
Jacob is making great progress. He now sits up readily on his own and can just as easily lay back down without thumping his head onto the floor. This may not sound like a great accomplishment but think about it in terms of yourself:
You have little control over your entire left side of your body. Try getting out of bed, putting on pants or even feeding yourself. Any new accomplishment would be worthy of cheering.
Jacob's therapist (PT) has created 2 braces for his left arm and wrist. He wears a full-arm brace to keep his left arm straight while he sleeps and the wrist brace helps keep his hand from clenching tight during the day. He is already showing more use of his hand and arm due to the use of these braces. Next on the list are foot and leg braces. He is so eager to walk and chase his brother and sister. These braces should make it easier for him to maintain balance and stand on his own - then on to walking.
Even though Jacob has been through Baby-Hell and back again, he seems to be in good spirits most of the time. He has a laugh that makes you grin from ear to ear And a charming smile to match. He is really starting to show a true personality.
Next post - pictures - I promise.
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