Steppin' Out

It has been over six months since I have written to this blog. To be honest, I have forgotten about it. This was an avenue for me to vent to no one specific about the issues my family faces with Jacob and his condition. Last October, Superstorm Sandy devastated the coastline of the region and we were just some of her countless victims. Jacob's issues took a back seat to and greatly complicated our problems of relocating and rebuilding. Since my last post we have moved back in to our home in Wantagh, however, the work is still not completed.
Through all of the problems we have encountered, Jacob has shown to be very resilient. He has taken to his therapy like a fish to water no matter where he gets it. The worst had to be in the hotel lobby where we stayed for three months. The best was two days ago - at home...Jacob took his first steps! His therapist, Rob, got him to go after a flag they were playing with and he walked three steps unassisted. This may not seem like much, but it means the world to me.
Jacob has become a little imp, just like his siblings. He knows when he is doing something wrong and makes a point out of getting daddy to chase him while he scoots away with my glasses or iPad. This is another reason why I have not posted lately. He is just 'normal' now. Anything that happens is not out of the ordinary or shocking (except the walking thing). This is who he is. He is just another one of my children. He gets treated just like the other two kids. I don't know if you understand where I am going here but this is how I feel.

If everything is normal, then what is getting you to make a new post? Glad you asked!
Christina brought Jacob in for pre-surgical screening today and everything went well. On Monday he is getting an angiogram to determine if he is a candidate for the final heart surgery, the Fontan. Daddy is getting jumpy - hence the new post. An angiogram is a 'nothing' procedure. I even had one in February. Unfortunately, his last catheter procedure gave him a stroke. I am not looking forward to Monday. We have come so far with him, I don't want to lose that.