Ever since his catheter procedure that was touted by the doctors as being unsuccessful, Jacob has actually been doing great! He has been extubated and is even off of the CPAP! The doctors have also cut him off of the milrinone to see how his heart is doing without it. Tonight's nurse, Corinne, stated that he seems to do better without all of the machinery that he has been on for over a month. Today was the first time since the Glenn procedure that his mommy has been able to hold him. Corinne (the nurse, not his sister), noticed that he has even been focusing better and better each day. He still has a little wander in his left eye, but c'mon, he had a massive stroke for goodness sake. Today was a good day; one of the days I consider a victory. I'll take them when I can get them.
Soon he will be given some tests to determine if he can be given a "G tube" so they can finally pull the N/G tube. The G is for gastric and the N/G is for nasal-gastric. The G tube will be surgically implanted and not be as irritating as the other tube. This will help with his feeding and hopefully a faster recovery than he is having now.
This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Wednesday, September 14, 2011
Now for some good news for a change
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