In a previous post I mentioned that feeding Jacob by mouth was challenging. I was wrong. Running a marathon is challenging - this is next to impossible! Every bite is a struggle. He winds up wearing most of his food. Christina seems to have the patience that I am lacking for this. If it were up to me, he'd be getting formula via the g-tube until he was old enough to buy food on his own. I am saying this out of frustration of course, but seriously, I was not expecting this. We have had a blessing in one of his nurses. Cheryl is a feeding specialist and she really knows her business. Jacob has come very far with Cheryl as far as eating goes. While I still lack the patience, both Christina and Cheryl can feed Jacob an enitre jar with relatively little bloodshed. When Daddy has to feed Jacob, there will be tears - and lots of high decibel screaming. OK, so after I stop crying and screaming, Jacob usually gets about half a jar of food down the hatch and a fresh change of clothes. We have cut back on the nighttime g-tube feeding so he is hungry when he wakes up. This has actually worked out pretty well. For the last few days, he has been eagerly awaiting his breakfast. Its still a mess, but this is a positive sign. Cheryl has been teaching us all of the tricks. He does really well when he is distracted. If we distract him with Wonder Pets (his favorite show) he doesn't put up much of a fight. With the aid of Cheryl and the patience of my wife, maybe I will see the light; until then, practice, earplugs and a large drop cloth.
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