This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Wednesday, February 29, 2012
Home care extended
We knew that sooner or later the at-home nursing would end. Today was that day. Christina put up a really good fight and got a 13 week extension. The great thing about the extension is that it brings us closer to the 18 months Jacob needs to be enrolled into UCP Nassau. Jacob is looking healthier by the day - he is turning into a little cherub. His eating habits are improving daily thanks to the nurses and therapists. Tuesday was Cheryl's last day with Jacob and her help with the feedings will be sorely missed. His other nurse, Daphne, was telling me that she was getting Jacob to stand on both legs for about 15 seconds at a time today. This may not sound like much but remember that he is partially paralyzed. This is a very positive sign that his brain is trying to "rewrite" his nervous system. The twins have been a little under the weather this week but nothing serious. Corinne has congestion and a cough and Jacob has been vomiting occaisionally. Christina was a little sick too. It has been a blessing that things are calm with Jacob and there have been no emergencies.
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