This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Thursday, July 14, 2011
The anxiety sets in...life on hold
As we are less than a week from Jacob's next major surgery, the Glenn Procedure, Christina and I are becoming rather anxious. Last night we discussed the all-too-real possibility of having only two kids to raise after Wednesday. Both us us have always known the risks behind this procedure but this is the first time we laid it out on the table how each of us feel. While I keep pushing away the thought of losing Jakie, I still feel it is a strong possibility. Christina and I both have bad-feelings about this surgery. This poor kid hasn't been able to catch a break since birth, why would that change now? Last night we discussed the issues of life insurance and funeral costs. I know it sounds horrible, but we have to be honest with ourselves; he may not make it out of the OR on Wednesday and we have to be prepared for it. How do you properly prepare for the death of your child? I know we should be planning for his future, but we have to deal with the present first.
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