This blog tracks the progress and setbacks of a child with Hypoplastic Left Heart Syndrome. Jacob and his twin sister were born on February 8, 2011. His sister was born with a normal heart.
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Wednesday, July 20, 2011
Hope, thanks Pandora
The last thing that Pandora released when she opened the box was Hope. I do not see hope as the curse to humanity that was told in the story. I am now waiting in the Pediactric ICU at NY Presbyterian and hope is the only thing that is keeping me going right now. Jacob is downstairs in the OR getting the Bilateral Glenn procedure, completion of the Norwood procedure and removal of the pulmonary artery bands that limited the blood low to his lungs. We got here at around 9:20am and we got to hold Jake for what we know could be the last time. We signed many consent forms for the procedure and were told of the risks. We already knew that this surgery was risky. What we did not know was that the stroke he suffered was hemmoragic and not ischemic. A hemmoragic stroke is much more dangerous. The neurologist had to clear him for surgery because there are additional risks associated with a hemmoragic stroke. If it were not for hope, we would be going through despair and depression. We are receiving so much support and well wishes from friends and family and we are grateful for it. Thank you everyone for your prayers and support. We are told that we would probably not hear anything until 7:00pm or so. This is going to be one of the longest days of my life.
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